a thoughtful web.
Good ideas and conversation. No ads, no tracking.   Login or Take a Tour!
comment by BrainBurner
BrainBurner  ·  3589 days ago  ·  link  ·    ·  parent  ·  post: President Obama Speaks on the Precision Medicine Initiative

Here's the press release for those that missed the webcast.

I support this initiative (though I think we have more pressing problems we should be dealing with before this). However:

    The Initiative will also engage a million or more Americans to volunteer to contribute their health data to improve health outcomes, fuel the development of new treatments, and catalyze a new era of data-based and more precise medical treatment.

I support the idea of having patient submitted data and medical records that all health providers can access. However, the security implications invovled with this specific health data is worrying.

Especially when:

    $5 million to ONC to support the development of interoperability standards and requirements that address privacy and enable secure exchange of data across systems.
2% of your budget is going to security?

Yikes. I know I'd be worried about submitting my data.