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So, I'm probably not going to read the entire book but I will say that no matter what it is a sad story. I find it hard to believe that anybody would voluntarily birth a child with a disability just so that they can be studied. But then one should never under estimate the stupidity of people, especially when they think they are attempting to do "good". Wasn't there a Seinfeld episode about bubble boy? Also it was sort of referenced in the Big Lebowski. Branded!