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OftenBen  ·  2981 days ago  ·  link  ·    ·  parent  ·  post: Pubski: September 28, 2016

Had my right heart catheter procedure performed yesterday. The procedure itself went fine, the results are bad. I have diastolic heart failure.

The doctors first thought is to treat the massive fluid overload and pressure issues I've got with drugs. Because I'm in early stages, and have a more in-depth understanding of what blood chemistry metrics they want to control than most, I think I can manage with diet alone, for at least a little while. I'm meeting with the nutritionist next week to put a tighter set of reins on my food restrictions, and I'm basically giving up alcohol.

There is no real 'treatment' only management. There is no cure except a transplant, and as long as I'm able to hold down a job of some kind, complete basic ADLs (Activities of Daily Living), I won't be listed for one. And I don't want one besides. I'll hold out for a 3d printed one or a re-cellularized ghost organ.

I don't know what else to say really. I took today and tomorrow off work even though by now I'm mostly recovered from the catheter. I'm not recovered from the additional diagnosis. I knew this day was coming for a long time, and now that it's here it's both under and overwhelming. Overwhelming in the sense that I have a lot of work to do. Underwhelming in the sense that it was a day like any other. There was some rain, I had fish tacos for lunch, went to bed after a mug of tea kinda like usual.

I'm going to do my best. To eat right, drink the right amount. Take the pills I'm supposed to even if they scare me.

I don't think I have any other option.