Standing and sitting is really uncomfortable, and it's not visible on me other than the fact that I have more scars then the average 17 year old. (And more stretchmarks) so I try to stretch and move as much as I can, or sit with pillows behin my back to stabilize it. I have a special matress, guards for my forearms to stabilize them during the night, I eat an NSAID (basically ibroprophen, but stronger, to save my stomach) when my body decides to inflame everything. I eat an medicine to lessen production of stomach acid to not get stomach problems from eating an NSAID, I take an kortison nose-spray to not get a sore throat when my sinuses also inflame. I basically can't sit still. Which isn't a huge problem. I missed a ton of school but I am going to a normal class with my teachers knowing that if I walk out for a bit, or kinda fold myself over it's not because I'm obnoxious it's 'cause my joints hurt. But also, I am very durable. I have never broken a bone and I was/am one of those kids that climb everything, do catwheels, back handsprings, etc in the back yard. I was a really active kid and I'm still quite active - especially in summers. I don't have to be careful with myself at all, except when it comes to standing around or sitting for long periods of time.